I received an update on JR, from Carol, so I will just share her email with you.
Here it is...
Hi DJ... we just got home from seeing JR and Cassie and we are so excited! We were there when the doc came in this afternoon and were able to ask questions and hear the whole story... there was in fact a little bit of scar tissue that was causing a little "teathering" of the cord, which she cleaned up, freeing the cord. The main problem was a fairly good size area of fluid build up which she drained which was causing alot of pressure on the nerves in the area which should now be relieved! It should free up the spinal fluid to flow normally now and should also take care of the 2 pockets of fluid they have known about for some time now.
We are already seeing great results!! His little feet were warm for the first time in months!! His feet have been ice cold and so tight from swelling for quite a while and that is all gone... also, we were amazed at how much he actually moved his feet, we even saw movement in his right leg that we have never seen before!
They also are hopeful that the bladder and bowel problems will resolve and the fluid pocket higher up on his cord will go away taking pressure off the nerves that they feel were interferring with chewing solid food and use of his tongue for speech! AND, they also feel that the scoliosis may also be helped by this!!! Of course they say "We are keeping our fingers crossed", but we know better!!
The miracles continue in this little boy and we are so thankful to God and for all the prayers. Continue to pray that all these problems continue to go away and he heal fast and stay free from infection and any complications. He needs to stay flat for 48 hrs to prevent spinal headaches. And to Pastor and Loren... you guys are AWESOME!!! Your presence meant alot to Cassie and Kenny! We will go up again tomorrow. Love, Carol
JR is out of surgery...
Carol (JR's grandma) just called me to let me know that JR is out of surgery. Apparently, the problem was not scar tissue, like the doctor had expected. It turned out to be fluid build up in his spinal canal, in the area of the defect, that was causing all the pressure on the nerves and the circulation problems etc. I think they were able to drain the fluid to relieve the pressure, so I think that means it should solve those related nerve and circulation problems. This is clearly an answer to our prayers! Carol said, she still doesn't know what has caused the curvature of his spine though, so hopefully the doctor will figure that out next. Thank you to all of you who have been praying for JR.......I know his parents and grandparents are very grateful!